Hello! Living with arthritis and other chronic conditions can be hard enough, but the little things make it really frustrating. Have you wondered how to travel by air with Humira or Enbrel? What biosimilars really are? Or where to find comfortable pants for arthritis? I write about tips, stories, and science I’ve learned from living with juvenile autoimmune arthritis.

Tips     Stories     Science     Everything!

Latest posts

  • flat, rectangular controller with all buttons on the face. R1/R2 are above the letter buttons, L1/L2 are above the d-pad. L3 and R3 are separate buttons in the middle.
    Arthritis,  Tips

    8BitDo Lite SE: Accessible Controller Review

    The 8BitDo Lite SE is billed as a controller for gamers with mobility impairments. It lives up to that pretty well! As with any accessibility solution, it won’t work for everybody, but I’m always excited for there to be another controller option. And for only $35, you can’t beat the price! I’m reviewing this as someone with arthritis in my hands, and I often have a hard time gripping standard controllers, reaching the shoulder buttons, and generating enough force for buttons. I’ve had the Lite SE since it released last July, so this is a review built on hundreds of hours of use. What is the Lite SE? The Lite…

  • Xbox Adaptive game pad
    Stories

    The Xbox Adaptive Controller Isn’t Accessible While It Costs Hundreds

    The Xbox Adaptive Controller (XAC) is revolutionary for disabled gamers. When it came out in 2018, it seemed to signal the end of expensive, cobbled-together, DIY solutions for adaptive gaming. But even 4 years after the release, Microsoft’s biggest gaming accessibility tool has two huge issues that make it extremely inaccessible: cost and availability. To start with, I love my XAC. I use it because I’ve had arthritis since I was a kid, and it makes my hands stiff, uncoordinated, and painful. I’ve also spent almost $500 to build my XAC to the specifications that my disability needs. Despite the hefty price tag, it still includes cobbled-together, DIY parts! Here,…

  • Stories

    Hello again

    Hi! It’s been awhile. I started grad school in 2020, and it’s been challenging. Not that grad school is ever easy, but then there was the pandemic on top of it. And the fact that I’m disabled and keep adding more health problems. As I’m wrapping up the master’s part of my PhD program, I’ve realized I miss having this place to write about things. Grad school is isolating. The pandemic is isolating. Having a disability is isolating. But writing helps make connections. I’ve been so busy with grad school, I forgot about that. So, what have I been up to for the past two years? Grad school, autoimmunity, speedrunning,…